Whether you’re a patient with a story to tell, a researcher that can contribute or would just like to say hello —We want to hear from you.
We love connecting with like-minded individuals and organizations. If you have questions or want to know more about what we do please use the form to the right. We aim to reply to all enquiries within 3 business days.
There are plenty ways to get involved in helping us improve the lives of thousands with rare diseases from sharing our work, contributing to research and fundraising.
We’re in pursuit of a goal that aims to help thousands of people who are suffering from rare diseases starting with Pseudomyxoma Peritonei. Follow our story with frequent updates documenting all of our milestones and outcomes.